Parliament: Cochlear Implants & National Institute for Health & Clinical Excellence
Last week there was a debate in parliament about the National Institute for Health and Clinical Excellence. Within this debate, there was reference made to cochlear implants, and wider benefits not being factored or measured when making a budgetary argument. This suggestion was made by the RNID:
Sandra Gidley (Shadow Minister, Health; Romsey, Liberal Democrat)
... That might be a little unfair, but many patient groups feel that they are treated unfairly and that wider benefits are not fully taken into account. It would help the public accept some of the decisions more readily if they were reassured that such factors had been taken into account. The then Minister of State, Department of Health, who is now Secretary of State for Culture, Media and Sport, came before us at the time and said that he was satisfied with the situation. Sadly, such is the reputation of politicians that the public do not regard that as quite enough evidence.That aspect came up again yesterday when I was at a reception that was hosted partly by the Royal National Institute for Deaf People. NICE is looking into cochlear implants. One of the concerns raised—it might be a false concern—was that while there would be savings for the education system because children with cochlear implants could engage in mainstream schooling, that might not be fully factored into the equation. It is clear that a one-size-fits-all solution is difficult to arrive at when examining wider impacts.
Since there's a current review on the case for bi-lateral cochlear implantation, any cost argument will be politically motivated by this.
Comment from Alison:
I really wish deaf organisations would stop giving out mixed messages here, and the onus for the deaf person to fit within society to be a cost benefit. Push cochlear implantation, because it would save money. Perhaps for some, there might be less recurring cost, but essentially it also gives a strong message with a CI you aren't meant to be demanding speech to text (or whatever rocks your boat) as far as access goes. It gives a strong message that the individual is solely responsible for fitting, and appearing "normal".
It is also bad policy reasoning, and moves away from an *individual* decision, without pressure. It starts to get dangerous as you trample onto an interpretation of a duty to have medical intervention, because you cost society money (another false argument). This is not a message that politicians need to be given, because it will have a ripple effect on the rest of us including children. Deafness should not be a cost-benefit exercise, and the same exercise is not frequently performed at the justification of women, black people, gay people etc.
For this reason alone, there needs to be Deaf input into this review, as like it or not it will have implications for the rest of us, and an undue pressure in medical settings or even an expectation to have an operation.
As a side note, I've worked with many children who have CIs. One summer I attended an event, where I had to deliver training, and one child in particular was extremely disruptive. They were told to go out from group settings etc, and demanded to go home. During the break I talked to this child one to one, and just let them talk. It transpired that they once attended a deaf school, and they were bribed into a CI by being told they could have a pet. After switch on, the child was transferred to a mainstream school; where they said they had no deaf friends, and found it difficult to communicate. Stating that they wanted to run away and they hated it. During the course of the residential, the child became more placid, co-operated and no longer wanted to go home (the place and to re-call the parents to tell them this). When the parents came to pick up the child at the end, they demanded to meet the person who "managed to control their child". The only response I was able to give them, "I just listened". It is stories such as this, that need to be remembered when people are policy pushing the you must fit into our agenda.
Source:
Hansard
They Work For You
It seems a hybrid implant / hearing aid is currently being tested. Part hearing aid part implant, which is aimed at hard of hearing people with some residual hearing but too much hearing to be considered a candidate for a CI. Since the implant threshold is much lower now (I have known people who have identified as HoH with implants); this would encompass a much broader spectrum of people.
We've been told that a complaint was filed in USA earlier this year against 
